Long COVID
Fact Sheet
TBA
Synonymous Terms
Long COVID
Postacute sequelae of SARS-CoV-2 infection (PASC)
Postacute COVID-19
Chronic COVID-19
Post-COVID syndrome
Prevention
Firstly don’t get COVID if possible
Several studies report lower rates of long COVID in people who are vaccinated
A case-control study found decreased intensity of symptoms in the first week of COVID and at 38 days in vaccinated versus unvaccinated people
Large observational cohort study of 2500 people with mild COVID showed dose-dependent rates of long COVID
42% in people with 0 x vaccinations
30% in people with 1 x vaccinations
17% in people with 2 x vaccinations
16% in people with 3 x vaccinations
Older age, higher BMI and comorbidities such as allergies and obstructive lung disease with associated with increased risk of long COVID
Prevalence
Largest study to date, meta-analysis of 54 studies from 22 countries between March 2022 and Jan 2022
6% of people had one of three long COVID symptoms at 3 months
Persistent fatigue with bodily pains or mood swings
Cognitive problems
Ongoing respiratory problems
Females > 20 = 10%
Males > 20 = 5%
Everyone <20 = 3%
Persistent Symptoms
Physical symptoms
Fatigue 10-90%
Short of breath 10-70%
Chest pain or tightness 10-40%
Cough 20-30%
Loss of smell 10%
Less common = Joint pain, headache, rhinitis, taste changes, poor appetite, dizziness, muscle aches, poor sleep, hair loss, sweating, and diarrhoea
Psychological symptoms
PTSD 10-20%
Impaired memory 20%
Poor concentration 15%
Anxiety / Depression 20%
Post Intensive Care Syndrome (PICS)
75% had at least one symptom at 1 year
Physical weakness 40%
Joint symptoms 25%
Cognitive dysfunction 25%
Muscle aches 20%
Children
5% still had at least one persistent symptom at 3 months
COVID Variant
Vaccinated people + Omicron variant = 5% long COVID
Delta variant = 10% long COVID
Observation study of non-hospitalised health care workers
48% persistent symptoms with wild-type variants
36% with alpha variant
17% with Delta and Omicron
Recovery
Shorter recovery for mild illness generally = 2 weeks
Longer for moderate to severe illness = 2 to 3 months
Long COVID duration was 9 months in hospitalised individuals and 4 months in non-hospitalised individuals
Among those with long COVID - 15% experienced symptoms at 1 year
Evaluation
History
Illness timeline
Duration and severity of symptoms
Type and severity of complications
Clots
Kidney injury
Oxygen needs
Ventilation
Heart problems
Delerium
COVID test results
Initial treatments used
Medical history
Medication
Blood tests
Generally not necessary
For more severe illness consider
FBC
LFT
UEC
Troponin if heart failure or myocarditis
D-dimer if new shortness of breath
TSH if unexplained weakness or fatigue
CK if muscle symptoms
Specific symptoms evaluation
See Up To Date for in-depth workup
Heart
Lungs
Dysautonomia
Brain
Clots
Smell / Taste
Fatigue
Kidney
Liver
Endocrine
Gut
Psychological
Skin
Infections
Sleep
Fatigue
“Flat battery” feeling, unable to do usual activities, trying to do more makes symptoms worse, fatigue does not improve with rest
Investigations - Bloods as appropriate, exclude other causes
Management - Hollistic, self-management with available energy limits, prioritising, planning, building in breaks and rests, knowing when to stop
Post Exertional Symptom Exacerbation (PESE)
“Crash”, “relapse”, worsening of symptoms post-exertion
Monitor symptom severity, an activity diary can help
Management is pacing in phases
Exertional breathlessness
Short of breath with physical activity
Investigation guided by symptoms
Hb
Spirometry
BNP or Echo
PulseOx and sit-to-stand testing
CXR D-dimer + PE workup if suspicious
Chest pain
Pain in specific positions, pain on exertion
Investigations guided by symptoms
Consider microvascular angina, AMI, myo or pericarditis, PE, costochondritis
Consider ECG, Trop, D-dimer, PulseOx + sit-to-stand, vitamin D, imaging
Autonomic dysfunction
Palpitations, dizziness, orthostatic tachycardia, GIT disturbance, generalised pain
NASA 10-min lean test, consider 24hr ECG + BP
Treat as per guidelines for autonomic dysfunction / POTS
References:
Evaluation and management of adults with persistent symptoms following acute illness (Long COVID) - Up To Date / Requires Log In
Long COVID: An Update - Primary Care Knowledge Boost / Podcast
Post COVID complications - HNE Pathways / Requires Log In
Long COVID: Prevention and Treatment - Leo Galland / PDF
Long COVID - Leo Galland and Mark Hyman / Youtube
Long COVID Clinic presentation - Flinders Medical Centre
UK Resources:
Your COVID Recovery Website: https://www.yourcovidrecovery.nhs.uk/
Interviews with Patients with Long COVID: https://healthtalk.org/Long-Covid-In-Adults/overview
Postural Orthostatic Tachycardia Syndrome:
BMJ Article on Orthostatic Tachycardia with Infographic Mentioned (March 2023): https://www.bmj.com/content/378/bmj-2022-072117
Information on Mastocytosis and Mast Cell Activation Syndrome:
Greater Manchester Long COVID Support Group: https://hsm.manchester.gov.uk/kb5/manchester/directory/service.page?id=Rn19N5XSimc
UK Long COVID Support Group: https://www.longcovid.org/
Support Groups for Families with a Child with Long COVID: https://www.longcovidkids.org/
Advice for Supporting a Child with Long COVID: https://theconversation.com/supporting-a-child-with-long-covid-tips-from-parents-of-children-living-with-the-condition-195153
Research on the Impact of Long COVID on Racially Minoritised Groups: https://blog.westminster.ac.uk/hicovestudy/
Research on whether existing Medications have any Impact on Long COVID ‘STIMULATE ICP’: https://www.stimulate-icp.org/
LOCOMOTION Study looking at Optimising Treatments in Long COVID: https://bmjopen.bmj.com/content/12/5/e063505
Be Part of Research: What Trials are available (here for people with Long COVID): https://bepartofresearch.nihr.ac.uk/results/search-results?query=long%20covid&location=
National Institute for Health and Care Research: https://www.nihr.ac.uk/patients-carers-and-the-public/i-want-to-take-part-in-a-study.htm
Resources around advice for Returning to Work:
NICE RCGP SIGN Guidance on Managing Patients with Long COVID (Last Updated Nov 2021): https://www.nice.org.uk/guidance/ng188
RCGP Online eLearning Module on Long COVID: https://elearning.rcgp.org.uk/course/view.php?id=492